Saturday, April 13, 2013

Results after core decompression of hips

I am going to update those of you who have not been on facebook. Colleen returned from her make a wish trip and her pain began to improve last week. We were able to decrease the amount of medication she was taking but it is still a huge dose. We had an appointment with the orthopedic doctor about 10 days ago and he states that core decompression of the hips was an option to alleviate her pain. Apparently, the dead bone, tissue, and inflammation in the bone presses on the nerves and was causing the excrutiating pain. We had the procedure done on thursday morning. She has two incisions on the legs with a few stitches at this time. We did have to increase her medications because of the incisional pain but are praying that we can take her off of a lot of this medication soon. 
     She is understandably frustrated with the added pain and the fact that she has been sick for so very long but she never complains. After the surgery we had a discussion with the ortho doctor. The procedure went well. They drilled holes in the hip bones to allow some of the dead bone to come out and everything went well. I asked him about how much of the femoral head or hip bone was affected and he said it was seventy five percent. None of the bone has collapsed at this time, but much of it is affected. He then said that she may need bilateral hip replacements in the near future. I was confused because he did not tell me this at her appt the week before. We clarified this with him. Apparently there is no way to predict how much of the hip will collapse. It depends on how quickly the new bone begins to grow in. When the new bone grows too quickly, it gets soft and the bone can collapse. There is another procedure which involves grafting bone and blood vessels from another area to help the circulation to the area but the ortho we have has not had much success with this operation. We are going to research all of our options. Monday I am calling both St Jude's and Children's hospital of Philadelphia to research all of our options. Please pray for relief from this pain, for encouragement for Colleen, and for wisdom for the doctors and that the Lord will provide direction in what treatment options will be best. Please also pray that the hips will remain intact. It truly would be a miracle but our God is able.

1 comment: